WOW it's been awhile!

What a crazy last few weeks it has been! The craziness of the summer has officially began! I have started seeing little "yellowish" spots at times during the day and also noticing a little almost "black out" when I stand up lately. I decided to move up my nero appt to June instead of waiting until August. Still hoping/praying it is nothing much, but worried more and more each day.

Still no luck on selling our house, but praying hard that the right person still comes around. We have been looking a lot at other homes and have found a few that would be perfect for our family so hopefully we can move on soon!!

Today is the 24 hour Lupus marathon on KFAN radio. (www.KFAN.com) For 24 hours, Cory Cove is talking, playing music, talking about sports, raffling things off, etc. Lots of guest speakers, and of course my little message I recorded a few weeks ago too! (which by the way, went VERY well!)

On a side note, Ross has given me a very special gift this year for my birthday (a little early as my birthday isn't until July). I won't tell you what it is, as it is very personal for me, but it is something I have wanted for awhile. Currently, I have a TON of research to do before I actually accept the gift but please pray that I make the right decision, if it's right for me or not.

Vision Problems

I went to the eye doctor today because I have been noticing my vision decreasing. I wasn't too worried..most people my age have glasses or contacts and I have nothing but I am on Plaquenil, which has a small percentage side effect that you can get this eye disease and lose your eye sight. So, I didn't want to take any chances and went in. I did the vision field test, and I scored perfectly so they were not concerned the drug has affected my eyes or given me the eye disease which was a relief!

However, they noticed that my pupils are not reacting to light which is very abnormal. This is usually the case in people who have had some sort of brain damage or are brain dead. Something like my neurons aren't connecting correctly to my eyes or something? (I didn't understand it very clearly) She said something like how I could have had a small stroke and not even known it. (WEIRD and SCARY, I know!) I started freaking out a little, but she said it wasn't something to really worry about and that I am getting referred to a Neron doctor to look into it a little more.

There is this little scare in the back of my mind that the Lupus could have spread to my brain. (This is totally only in my head...no doctors have confirmed this or even gave me that idea!) I really just don't understand what else could be wrong with my brain.

So anyways....my appointment isn't until August, and I'm sure it is nothing, but if you could still pray for me to stay sane these next few months and not over react. And also, to have positive news when I do visit the specialist in August. Thank You!

6 months

It has been 6 months since I was at my highest dose of steroids/lowest point in my life. Look at the difference in my face. Crazy!

Happy Mothers Day!

What a wonderful day to spend my 2nd Mothers Day! I got flowers, beautiful cards, and a BEAUTIFUl bracelet with Nolan's name on it. We went out for brunch with family, and even got my favorite ice cream treat...dairy queen blizzards! It was the perfect day. I Love being a mom and am so thankful that I can celebrate this day. Thank you to my parents and Ross's parents for everything you do for us too!

I finally went to the doctor, and luckily I went in....I had bronchitis. As most of you know, when I have these illnesses, it is very dangerous for me. We never know what a simple cold can turn into for me, like in this case..bronchitis. I'm still coughing up a lot of interesting looking stuff, but am feeling SO much better and ready to go back to work tomorrow for a hopefully FULL week of work:) I pray that my family stays healthy, as the house is probably full of my germs from hacking for two weeks.

I am also praying for us to sell our house. We finally put it on the market officially a week ago and are so ready to move onto the next step and into another home that we can call home. I love this house more than anything and love all the memories we have created here, however, I think it is also time to start new memories in a new house. We are literally overflowing in this house! Please help us pray someone perfect can find our house and live here and have wonderful memories here like we had and pray we find the perfect house for our family too.

updates

Ah, it seems like so much work right now to post. I have had this horrible cold for over a week now! I am constantly coughing, stuffed up and major headache. Finally today I called the doctor and they told me to hold out for a few more days so I went home from work and went to BED! I think I'm starting to feel better but still have lack of energy right now. Right now, I know sleep is the best medicine so I'm trying to get a lot of it!

Also, some exciting news...I got invited to do a few minute blurb about how lupus has affected me on a radio show at the end of May for a Lupus marathon benefit. I'm still deciding what I am going to say...so much to say and just in a minute or two could be challenging for me. I know God will give me the right words to say though. I will post more about exact date, time, and radio station as soon as I know more.

I am also going to go in June to a class to become a certified support group facilitator for Lupus. I would love to be able to host or co host a support group for people with Lupus and share my experiences with them.

I think that's about it for now, until then, please pray for increased strength and health for me! Thank You!!!