He was there again

It happened yet again. God had answered yet another one of my prayers. The 3 hour test returned great results. I do have spots on my retinas, however, they are not eye disease spots. They are what the doc believes to be just inherited spots that I have on my retinas. They will not affect my vision or anything...so I will remain on the medication and once again thank the Lord for answering yet another one of my prayer requests.

Now that this is over, I really need to focus on packing up this house. It is becoming a little bit stressful! Our new house will be completely finished next Wednesday so we are super excited to see how everything is once it is done!

I turned Nolan's crib into a toddler bed last night. Wow. A toddler bed. It took me an hour to convert it and honestly, looking at my baby sleeping in there, I want to turn it right back into a crib. I can't believe he is sleeping in a big boy bed. Wow. He was really scared to go to sleep in it last night. He kept getting out and crying and I would go into the room, and lay him back down and leave the room. Finally, I laid my head on his mattress next to him, and he was out. Tonight was much easier. He did still get up and cry and then Ross had a "talk" with him and laid him down and he went right to sleep. He also slept through the night last night without getting up. Hopefully tonight is the same! What a big boy he is becoming. He gave up the nuk without a fight, moved to a toddler bed with barely a fight. Now...if only potty training can be that easy??!! We will be starting that soon...should be interesting:)

Thank you, Thank you, Thank you, again for all the wishes and prayers for the eye tests today. Hopefully this is the LAST test in a LONG LONG time!!!!!

Updates

I just wanted to let everyone know that you can now register and/or donate for the Lupus Walk for Hope on Saturday September 11th. Just go to www.lupusmn.org and click on the Lupus Walk for Hope logo to the left. From here, you can click "register" or "make a donation". If you want to register, just follow the directions to register, when it comes to a part asking if you want to create a team or find a team, you can find my team by typing in Anne Burau and join my team this way. You can either do the free 1 mile walk or do the 5K walk/run. I choose to do the 5K, just because 1 mile isn't that far and I like to run. We will be bringing both boys, so we will see if running will even be an option though!

A few updates: Friday July 31st at 11:00 I will have my retina specialist appointment. It will be a 3 hour appt to check my eyes and see if the medication I am on is causing me the eye disease or not. Please send prayers my way on this day. The tests will be long and rigorous, and my eyes are so sensitive to light and will have to be held open with very bright lights shinning on them for long periods of time. I'm so dreading that part!

My energy level seems to be starting to get better, I'm noticing myself staying up later and later and not feeling as tired. Perfect timing for this as we are moving in TWO WEEKS! I have my whole lower level packed but the upper level is going to be the hardest part. I'm trying to just do a few boxes a night so hopefully it will all come together soon!

I have stopped losing weight and am just maintaining the 125lbs right now. Glad it isn't going down anymore so I'm not too worried about it. Appetite and Energy are up, so maybe when I turned 26, my metabolism went the opposite way:) Yeah Right!

I'll update Friday or Saturday on how the eye appointment went. Remember to register or donate if you can for the walk!

Thank You!

Always going to be an uphill battle, sometimes I'm gonna have to lose

Whew..what a dramatic title hu??? It's really how I have been feeling lately though. Living life with Lupus is such an uphill battle. I really can't even remember what it's like to not be tired.


I celebrated 26 years of life last Thursday, on July 9th. Only 20 of those years being healthy years. Right now a majority of my life has been healthy. It's weird to think that when I'm 40, a majority of my life will have been me being sick. Not a surprise that I woke up on my 26th birthday and was not feeling good. I seem to have caught a cold in the middle of the summer. Sore throat, cough, headache, the whole works. On a positive note, my husband sent 2 dozen roses to me at work along with 2 (1) hour massages. My mom was also in town so I got to come home and spend my birthday with her, something that hasn't been done in years! We ordered pizza and she bought a lemon layered cake. By the time the pizza arrived however, I was so sick I couldn't even eat it. I'm glad my mom, husband and Nolan enjoyed it though.

I also got to celebrate my 26th birthday by going to the doctor for the usual visit and tests. I was nervous as heck. I mean, who wants bad news on their birthday?? I thought with me being so tired and losing so much weight lately that things might have taken a turn for the worse, but I as wrong. The doctor walked into my room with the biggest smile I have seen on his face ever. "Anne, you are doing so great!" he says. "really?" I said. He said things are getting really good, kidneys not only remaining stable but almost a tad getting better. Lupus is completely not active right now. I was beyond surprised. Happy, but surprised. He looked at my chart and noticed that I have lost quite some weight. He asked if I was eating, drinking fluids,the usual. "yes, Yes, and Yes" then he told me not to worry about it, and that if I lose anymore in the next month , then it will be something we will have to look into. SO...I'm trying not to worry. However, if you know me, I am tall and normal weight is 135. I'm happy with 135. Don't get me wrong, I'd take 130 though usually. I'm a happy size 6. Well..I am now 125lbs and size 4. 125lbs with clothes on and food in my stomach I should say. Clothes that just fit me good 4 weeks ago are now falling off. I had to buy some new clothes for work. It isn't normal.

I'm also struggling with some personal issues in my life right now, that I ask some prayers for.

The Waiting Game...

Well, I couldn't get scheduled to see the Retina Specialist until July 31st so I have a few more weeks. It must not be THAT urgent... Just gives me more time to worry about it I guess!

Nolan is getting so big and changing every day. He is talking a lot more. His most common words now are "momma" "dadda" "hi" Bye" "Love you" "Car" "Please" and "Puppy". He has figured out that if he just says "please" or in Nolan's words "Peas" he can get what he wants. He has also started rebelling a little. When I tell him to come here...he takes off in the opposite direction, wanting to be chased. The little stinker in him is sure coming out! I also think he is going through a growth spurt. All he does is eat. He seriously eats more than me at dinner time. It's crazy. Here is a video of him last night. Apparently I don't feed him enough...

I am finally starting to really notice my hair getting thicker, especially on top. I don't have the "bald" spot that I used to have! I am also trying to keep it short to make it look fuller. I just can't wait to have a full head of thick hair again!!! Someday!

STILL have not gained any weight back from being sick. I usually wouldn't care, but this just doesn't seem right. I haven't worked out in over 3 weeks and I'm eating whatever I want. Usually...when I do this, I gain weight VERY easily. Something doesn't seem right. I'm going to give it a little more time, and then probably call or go in to get checked out.

Excited to have a day off this week and enjoy the 4th of July weekend with the family. Happy Independence Day to All!