check out my running blog to read my completion on my first half marathon!!!
http://www.anneburau.blogspot.com
Thursday, June 10, 2010
Wednesday, June 2, 2010
Just a quick update
Just had a doctors appt w/my rheumatologist. I haven't had one in so long I was actually kind of excited to see her! Labs still looking great for blood work which is what I expected. Lupus has now officially started affecting my skin though. I used to be so happy that it hadn't bothered my skin and I could lay out in the sun and not be affected by it, but not anymore! I have been breaking out in rashes from the sun. I have cream to help make the rash go away and not itch but am suggested to wear long sleeves and hats and stay out of the sun as much as possible. Definetely a bummer. Especially since we just bought a cabin up north on the lake and all....
She also checks my knee that is having pain and it doesn't seem to be lupus related (again I figured that). She said to not run anymore until race day, and she gave me some more numbing type cream to be putting on it 3 times a day. I also got a knee brace to try out. Hopefully these all work to make the pain go away soon and make for a more comfortable run. (if you can have a comfortable run for 13 miles!)
My weight has dropped a few more pounds since last visit. I'm down to 118 with clothes on. Doctors don't seem concerned yet. We will wait until training is over to see if I can put any weight on or if I am still losing. That will be the ultimate test.
Just had to journal this appt so I have it to look back upon. Glad things are still going strong!
She also checks my knee that is having pain and it doesn't seem to be lupus related (again I figured that). She said to not run anymore until race day, and she gave me some more numbing type cream to be putting on it 3 times a day. I also got a knee brace to try out. Hopefully these all work to make the pain go away soon and make for a more comfortable run. (if you can have a comfortable run for 13 miles!)
My weight has dropped a few more pounds since last visit. I'm down to 118 with clothes on. Doctors don't seem concerned yet. We will wait until training is over to see if I can put any weight on or if I am still losing. That will be the ultimate test.
Just had to journal this appt so I have it to look back upon. Glad things are still going strong!
Monday, May 31, 2010
Look what a year in a half difference makes..
This was November 08' at my highest dose of steroids:
1.5 years later: steroid free, flare up free, kidney problems free! (and no puffiness in my face and body!:))
I just found that old picture and just had to re-post it. It reminds me how blessed I am and how far I have come in such a short period of time. Next Sunday, I'll be defying the odds of people with Lupus and the comments of previous doctors and will be running my first half marathon! Though I'm nervous as can be, I'm so excited and feel so privileged to be able to have this second chance in my life to run again. I feel like I'm not only running this race for myself and to prove something to myself, but I'm running it for every person with Lupus and kidney disease. Though the diagnosis seems grim, there are good things that can come out of it. I do not know the next time I will be sick, but I'm sure thriving on these good days I'm having and pray there are many more good days to come!
I will post the results of the race when I get back next weekend! Wish me luck!!
Thursday, May 13, 2010
Almost passing out episode
Pretty sure this doesn't have anything to do with Lupus or Kidneys, but I'm blogging it to journal it so if it happens again, I have a record of when, how, etc.
Tuesday at 10am I was sitting at my desk at work typing and noticed all of a sudden the screen was blurry and I was light headed (note I was also sitting down at this time which is weird). I turned away from my screen and almost felt "out of body" experience like. I yelled for a co-worker to come in as I thought for sure I was going to pass out and didn't want to be alone. I was sweating and shaking. My Co-worker gave me a granola bar and water and within the hour I was fine. I called my doctors and they both thought glycemia. Now, I'm not diabetic or anything but apparently this can happen to perfectly healthy people without any diabetes. It's basically just low blood sugar. The thing that is weird about this is that I had a good breakfast. Bagel w/cream cheese and orange juice and water. I wasn't dehydrated or hungary. I did have a medium skinny vanilla latte from Starbucks, which isn't too unusual for me. I usually have 1-2 of them a week but am taking a break from them for a little bit. I have since been drinking more water and eating something every 2 hours and *knock on wood* it hasn't happened again. Again, journaling this event just in case it does happen, I have a recollection of it.
Other than that, feeling great! When I called the doctor about this episode they looked it up and I guess I was supposed to come in in April but missed scheduling an appointment so they are going to hold off until June. As much as I love my doctors, it sure is nice to not see them as much. And much easier on the pocket book too:)
Tuesday at 10am I was sitting at my desk at work typing and noticed all of a sudden the screen was blurry and I was light headed (note I was also sitting down at this time which is weird). I turned away from my screen and almost felt "out of body" experience like. I yelled for a co-worker to come in as I thought for sure I was going to pass out and didn't want to be alone. I was sweating and shaking. My Co-worker gave me a granola bar and water and within the hour I was fine. I called my doctors and they both thought glycemia. Now, I'm not diabetic or anything but apparently this can happen to perfectly healthy people without any diabetes. It's basically just low blood sugar. The thing that is weird about this is that I had a good breakfast. Bagel w/cream cheese and orange juice and water. I wasn't dehydrated or hungary. I did have a medium skinny vanilla latte from Starbucks, which isn't too unusual for me. I usually have 1-2 of them a week but am taking a break from them for a little bit. I have since been drinking more water and eating something every 2 hours and *knock on wood* it hasn't happened again. Again, journaling this event just in case it does happen, I have a recollection of it.
Other than that, feeling great! When I called the doctor about this episode they looked it up and I guess I was supposed to come in in April but missed scheduling an appointment so they are going to hold off until June. As much as I love my doctors, it sure is nice to not see them as much. And much easier on the pocket book too:)
Tuesday, May 4, 2010
It's been awhile!!!
I guess it is hard to keep up two blogs!! I've been updating my running blog pretty frequently. You can read that at www.anneburau.blogspot.com if you haven't checked it out yet. Countdown to my half marathon is a about 4.5 weeks!!
Healthwise, I've never been healthier! (knock on wood....) I haven't been to the doctor in months and don't have an appointment until June! I only got ONE cold this whole winter/spring and it only lasted about 5 days. It's been amazing!
Nolan is growing and changing like crazy! He now stays 3-4 word sentences and repeats EVERYTHING!! He also says "mom, what's that?" to just about everything. He's super stubborn with everything and his personality has came out full force. He is also very obsessed with Daddy right now. Daddy has to give him a bath, daddy has to read him a book, daddy has to tuck him in. I should take advantage of this "free time" i have but it makes me too sad!! This "stage" has been going on almost a month now! I hope it ends soon...I miss being the favorite person in my little boys eyes!
Were also back to getting a cleaner for the house. During the summer months, I would rather be spending time at the cabin, running, playing with the kids, etc than cleaning the house!! We're excited to have some help around the house again. Now, if only someone could cook meals, do laundry, and mow the lawn we would be good to go:)
The next time I update will probably be pretty close to marathon date or afterwards so I'll update with how that goes!!
Healthwise, I've never been healthier! (knock on wood....) I haven't been to the doctor in months and don't have an appointment until June! I only got ONE cold this whole winter/spring and it only lasted about 5 days. It's been amazing!
Nolan is growing and changing like crazy! He now stays 3-4 word sentences and repeats EVERYTHING!! He also says "mom, what's that?" to just about everything. He's super stubborn with everything and his personality has came out full force. He is also very obsessed with Daddy right now. Daddy has to give him a bath, daddy has to read him a book, daddy has to tuck him in. I should take advantage of this "free time" i have but it makes me too sad!! This "stage" has been going on almost a month now! I hope it ends soon...I miss being the favorite person in my little boys eyes!
Were also back to getting a cleaner for the house. During the summer months, I would rather be spending time at the cabin, running, playing with the kids, etc than cleaning the house!! We're excited to have some help around the house again. Now, if only someone could cook meals, do laundry, and mow the lawn we would be good to go:)
The next time I update will probably be pretty close to marathon date or afterwards so I'll update with how that goes!!
Tuesday, March 23, 2010
Friday, March 12, 2010
Random Updates!
Nolan's 2nd Birthdy party was a success. We ate train cake, unwrapped a ton of presents, and got our pictures drawn by a caricature! I think he had a great time. He sure was pooped when it was all over. AND we think he had an allergic reaction to the raspberries. His face turned brigh red after he ate them...we are going to try them again in a few weeks and see if he gets another reaction. Very weird!!!
Nolan just got diagnosed with RSV and double ear infections yesterday. He had been coughing, low grade fever, runny nose, etc for a week so we finally took him in. Both things he has never had, guess it's a first for everything. He's on a neubulizer every 4 hours and antibiotics twice a day. He seems to already be feeling better and coughing less so hopefully he will be better by Monday! I have been coughed on so many times it will literally be a miracle if I don't get sick. So far (knocking on wood) i feel great and have no signs of getting it:)
I am up to running 5 miles and my offical training starts in just a few weeks. I have my running watch ordered and need a new pair of shoes, and then I will be set. Now that the snow is melted, I am pretty much ready to start running outside! I am very excited to get off the treadmill!!! Praying for a healthy 10 weeks of training!
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